Inspirational Stories

Hearing stories from other patients, caregivers, and professionals regarding lymphedema can be very powerful. You can also share YOUR story with your new community to inspire those around you. You will instantly feel a connection to the large lymphedema community. Watch encouraging and motivation videos here.

Deborah Cordner Carson

“I’m probably more of an athlete than I would have been if I didn’t have lymphedema.”

  • Secondary lower extremity lymphedema
  • Competed in the CrossFit Games three times
  • Won the Spirit of the Games Award in 2012

Cynthia "MsCjay" Judge

"To me, the lymphedema community is my family. That is where I'm the happiest"

  • Secondary upper extremity lymphedema
  • Patient Advocate and Co-Host of the Lymphedema Mavens Podcast

Robin Miller

"People can sympathize with you, but no one can empathize unless they actually have it because they don't really understand."

  • Secondary upper extremity lymphedema
  • Patient advocate

Tristen and Tammy Reid

"Tristen is a real role model for a lot of these kids... These kids are seeing that you're not going to be limited by this, you just have to take care of yourself so that you can."

Tristen:

  • Primary, bilateral lower extremity lymphedema, born with swelling
  • Patient advocate

Tammy:

  • Tristen's mother
  • Received training in MLD to help her son
  • Parent advocate

Amy Santiago

“Share your story with others. You’ll be relieved, and through that you will inspire millions.”

  • Primary bilateral lower extremity lymphedema
  • Misdiagnosed for 18 years
  • Patient Advocate and Mrs. Florida International

Erin Sokalsky, ATC, PTA, CLT-LANA 

"My advice for lymphedema therapists is... love it! You will get great gratification out of doing this, because these patients for you improving their lives and it's just a wonderful thing to be a part of somebody's life like that."

  • Lymphedema therapist with over 15 years of experience treating patients and working with compression garments